chicken pox

Last week Stephen had chicken pox this meant a whole week off school.

Well this has been the happiest we have seen Stephen for a long time( the chicken pox never really bothered him), no morning fight to get ready, no sulking and locking himself away in the evening and he was even talking! which for stephen is a very rare thing, he used the most words we have ever heard him say. the only stressful moments were when he had to go out the door to walk to the school to collect his brother and sister.

During the week he showed us how much he can do when relaxed, he done painting pictures of trees, a small amount of writing and number work and best of all he showed us he can spell, he was using a cbeebies game where you made a picture and he typed his own name into the banner at the top, after he printed his one he made one for his little brother checking with mum that he had got all the right letters in Derek’s name.
it just goes to show how much school affects him we would not normally have any of this and his behaviour is unbearable, either grumpy and hiding or angry and violent.

To top things off this morning Stephen was back to school and the usual arguments happened again, would not stick to the routine and did not want to get dressed. This evening he had an after school gymnastics club which he enjoyed but after dinner he spent the evening on his computer and/or in front of the t.v .

Not long now until the summer break, then hopefully either special school or home educating in september, I cant keep seeing my boy shut down like that after just one day back!

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The story so far

Before I start posting regularly I thought I’d fill everyone in on the story so far.

Stephen has been under the care of ‘community pediatrics’  and speech therapists since before he started Pre-school but is so far undiagnosed(suspected autism)

As he is non-verbal the pre-school taught him makaton so that he could communicate with them, us and others.

in September 2012 he started at a mainstream Primary school and the issues began….

  • No makaton training was provided to staff so they could communicate with him
  • there has been and still is no/ very little communication between the school and us
  • stephens is starting to act out(he has hit one LSA, and today thrown his chewie bangle at her)
  • He hates swimming but there is little support for him

these are the worse bits there is a lot more but to much to type….

I have a formal complaint in with the board of governors, and have been getting advice from Autism Anglia, regarding how to proceed. And we have been looking at other schools, for 2 reasons

  1. to see what SEN services they offer
  2. with a view to pull stephen out

I am going to use this to tell people about our issues and how we deal with them so anyone in a similar place can see how we are working through it and hopefully help them.