chicken pox

Last week Stephen had chicken pox this meant a whole week off school.

Well this has been the happiest we have seen Stephen for a long time( the chicken pox never really bothered him), no morning fight to get ready, no sulking and locking himself away in the evening and he was even talking! which for stephen is a very rare thing, he used the most words we have ever heard him say. the only stressful moments were when he had to go out the door to walk to the school to collect his brother and sister.

During the week he showed us how much he can do when relaxed, he done painting pictures of trees, a small amount of writing and number work and best of all he showed us he can spell, he was using a cbeebies game where you made a picture and he typed his own name into the banner at the top, after he printed his one he made one for his little brother checking with mum that he had got all the right letters in Derek’s name.
it just goes to show how much school affects him we would not normally have any of this and his behaviour is unbearable, either grumpy and hiding or angry and violent.

To top things off this morning Stephen was back to school and the usual arguments happened again, would not stick to the routine and did not want to get dressed. This evening he had an after school gymnastics club which he enjoyed but after dinner he spent the evening on his computer and/or in front of the t.v .

Not long now until the summer break, then hopefully either special school or home educating in september, I cant keep seeing my boy shut down like that after just one day back!

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Statement of SEN review

Today was the review of Stephen’s statement of SEN, we did not really know what to expect. But after it was over i was a bit underwhelmed with what was discussed, Basically nothing is going to change apart from the fact his statement will be based on his autism instead of the speech delay, the school and specialist’s want the objectives e.t.c to stay the same as they are now.  We had support from Autism Anglia through the meeting which was a great help and I would recommend to anyone to take someone to every meeting with a school for support and advice.

We shocked everyone at the meeting when we requested a change of school to Market Fields, our local special school which has specialized in autism. From our visit the provision looks soo much better than what he is receiving at the moment. If we can’t get a place in Market Fields for september we will be d-registering and homeschooling Stephen. I am of the opinion that Frinton primary school will not be able to cater for stephens needs no matter what the statement says they are supposed to do for him. I know my family don’t support the idea of homeschooling, but anything is better than what he is getting. He hates school.

 

There was a good bit this week in the local paper…….ME check it out  http://www.clactonandfrintongazette.co.uk/news/clacton_frinton_news/10465577.Dad_s_run_for_five_year_old_Stephen/?ref=mmsp

Half-Term

School holidays are always a strange time in our house. The older kids are never seen as they are either out with friends or glued to t.v’s and computer games, and Stephen and Derek are just Stephen and Derek – happy, playful contented little boys. But this Half-term was different, Stephen has been really off definitely now himself.  I think school was getting to him, and he dose not understand why we had to see the doctor last week.

The older kids have been told about his diagnosis but have started overcompensating for him and his needs, so we got some books from the national autistic society to help them understand how to behave with him…

  • My Brother is Different – this is a great book for younger ones and kids who don’t read very well
  • Everybody is different A book for young people who have brothers and sisters with autism – provides more detail for the older ones

Our eldest has also been reading;- The curious incident of the dog in the night time – which i think is a great read for anyone who knows people on the spectrum or not.

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On Monday we went for a family day out at Highwoods country park in Colchester, We went for a 2 hour stroll around the park taking in the views of the meadows, the town and animal spotting. Stephen was really enjoying the fresh air and seeing all the different places and hunting for the animals, but the further round we went the more we could see he was struggling to process everything, it got to the point where the last little bit he was almost being dragged to the end while he was only watching his shoes. When we got back to the visitor center we sat down for our picnic and an ice cream Stephen relaxed again as he knew where he was, after lunch we had a little play in the park and sat by the lake but be 2P.M all the kids were fed up so we headed home via the pets shop to get a new hamster ball for the schools hamster which we are babysitting again this week. Stephen slept the whole way home!

Tuesday was another frantic day as we had birthday party to attend, Stephen socialized for a little, well he was in view and played pass the parcel, after a couple of hours he disappeared, when i found him he was sat upstairs in his cousins bedroom, on the top bunk of the bed playing with fireman sam toys.

Tomorrow we are going to have our last fun day of the half-term before the arguments begin again tuesday morning to get everyone to school 😦 so we are going to Walton on the Naze to explore the naze and burn some energy.

 

 

On a different subject Jo and I have had some tough decisions to make regarding Stephens schooling, I think we came to a mutual decision and we discussed it with Stephen. It is quite interesting to hear a 5y/o’s view on his own education and how he wants it to happen, I have always known Stephen is smart but sometimes it does make me wonder who is the one with learning problems???? He even had reasonable arguments for why he wants it that way.