Friday was D-day in our house, the house was full of different emotions, Jo and i were excited, happy and nervous all at once and Stephen was scared about seeing the doctor.
So the time came and we set off to the hospital, 2 very nervous looking parents and a little man who did not understand why he needed to see the doctor. As we sat in the waiting room Stephen relaxed while playing with a puzzle, We got called through and the doctor got straight to the point asking how we thought the ADOs assessment went and what we thought he would say…we were unsure so he put us out of our misery saying I am diagnosing Stephen with:
- classic autism spectrum disorder
- developmental learning delay
- communication delay
It was like a weight lifted off us, we had been saying for the last 2 years we thought it was ASD and now finally someone confirmed what we thought. It Feels strange being excited and happy that your child has been diagnosed with a disability, but that is how i felt friday night while at work. I don’t think everyone I work with understood why I felt this way-but i think this is partly due to living in a town where having disabilities is frowned upon, But i don’t care I will educate them my son may be different but he is still just a little boy trying to live his life happily.
Today I have the task of explaining to the older three children why there little brother is different and why he acts the way he does. I don’t think this will be an easy task as my oldest likes to think he is special and no one else is, whereas in fact the only thing different about him is how much sugar he consumes. I am not sure they all understand that we love them all the same it is just Stephen and Derek need more of our attention.
Next week we have the task of deciding what we are going to do with the schooling, as i see it we have 3 options;
- keep him where he is even though it makes him unhappy
- find another mainstream primary school as the local sen school is full
- home school him
This decision has been made more difficult by Stephen why he doesn’t like school
- does not like all the playing
- does not like people hitting each other
- does not like not being around daddy – this one hurt!
I have also witnessed other children at the school with no understanding of why he is the way he is they were saying’ if we stand still he can’t see us and will go away’.
This decision is so hard i think my head is going to explode….ARRRRRRGH